Darcy's Poem A beautiful poem from, Darcy, one of the children we support... My Journey with Epilepsy Having Epilepsy is no walk in the park, A long and windy road it has been. A road it feels I will never be able to leave, It is now part of me. Everyone always asks how it feels when I am ‘unwell’. The truth is I feel under attack – Epilepsy is as strong as hell. Dizzy and sick and tired and grumpy are common things I feel, From head to toe, my body aches, the feeling is unreal. Needles, medications, EEGs, and special diets have all become normal life. Hospital staff remember my name when I am in that dark hole, They help me see the light. Yet I am lucky and thankful, Something my Mum reminds me of most days, Epilepsy is only a part of me, and weirdly I have learnt to become it’s friend, Yes, sometimes the inevitable happens and we fall out, and that’s a frightening place to be. But my family keep me safe and strong, and help me find my way. The truth is now I can’t imagine life without it, it’s helped me become who I am: Strong and determined, my life it will never overcome! Manage Cookie Preferences