Emma's Poem

In celebration of National Poetry Day we share with you a beautiful poem written by Emma for her son Toby.

Before your life began you were a spirit child

With the wind you ran so vibrant and wild

Belonging to God yet free as a bird

But then it was me you chose, or so that's what I heard...

You picked my body before I even knew

And when we conceived it all became true.

You grew in my tummy and connected with me, I loved every moment it was just meant to be

Into our lives so fondly you came

From that moment on life would not be the same.....

Not for the reasons that most babies are

you came with a journey for us to go far

Only you knew that normal wasn't meant to be, you wanted to help teach us about epilepsy

You knew the outcome before we did you see, You knew life would be hard but still you picked me

You chose the road and exactly when it began, God gave you the choice to become a young man

You trusted my instincts and trusted my strength

You knew that for you I would go to great lengths

You knew that our journey could never be planned any more

You knew that for seizure freedom we would have to fight for

Thank you sweet Toby for believing in me even when bad times mean that I cannot always see

My strength is your spirit that's shown from inside, through you sea blue windows that sometimes your seizures can hide

My courage is yours as your bravery shows

How you get through it nobody knows

As long as I’m with you no matter what

I hold you and guide you and give it all that I’ve got

I love you my angel for when you picked me

You have shown me life's window for all it can be

We now live life simpler and appreciate small things, and I couldn't be more grateful for your life brings

I can't say it's easy but there's nothing more true

Despite all our battles I'd always pick you x