A poem to share, written by Jack's mum, Emma...

Jack had many seizures
He had a lot each day
The only thing me and Mike could do was hope they went away
Sometimes Jack was happy but mostly he was sad
The seizures used to attack at random and then he would feel bad
He was always just so tired
He was always so so ill
He looked at us so helpless
We nearly lost our will
The medication he was having took his smile away
But the medicines he had to have, it’s just the price you pay !
Along came The Daisy Garland
Supporting us each step
Commencing the ketogenic diet,
I was a nervous wreck !
Happy days and sad days
We’ve been through them all
Every day brighter and Jack is nearly standing tall
This epilepsy journey is very dark indeed
But together we will fight this beast
Awareness is what we need !!