Henry I am so grateful for The Daisy Garland's support in funding our epilepsy monitor. Henry was diagnosed with Lennox Gastaut Syndrome last year after having complex drug resistant epilepsy since his first seizure aged 3 years 3 months. Henry has continued to have seizures for the last 4 years, the longest stretch being seizure free was two weeks. Henry has numerous seizures almost every night and this has resulted in Henry sharing a bed with me for the last four years. My hope is that the monitor will alleviate some of my anxiety around night time and you never know may result in Henry being able to be in his own bed at long last. Thank you so much for your support Manage Cookie Preferences