Stephanie's Poem A poem written by Kia's mum, Stephanie: You're not your gene mutation Or the standing frame you use You're not the words you do not say Or the clothes you cannot choose You are not your wheelchair Or medications you must take You're not the frequent seizures Or the tortured nights awake You are not the diagnosis Or the specialists you meet You're not the gaiters on your arms Or the splints upon your feet You're not your special glasses Or the heart monitor inside your chest You are the beaming smile you give And your cuddles (which are the best) You are your beautiful little squeals Bringing mummy so much joy You are sheer happiness in your eyes As you bash your noisy toy You're your kicks that splash the water over the sides of the bath, You're the teacher leading mummy Down the right (and happy) path You are the beauty in your laugh And your pretty little feet You're the humility you bring out In every person that you meet You're the softest touch of tiny hands And the cutest button nose You're the gentlest of breathing When your gorgeous eyes start to close You're the strength that stops your seizures You're the smile that lights up the room You make others reflect on how lucky they are And banish tears and gloom You are the pride in mummy's heart While she watches as you grow I know you can't understand these words but Somehow I know you know Manage Cookie Preferences